Research Findings
Unveiling the Gaps: Key Insights from Our Research
This whitepaper is the result of extensive literature review and over 20 hours of interviews with stakeholders across clinical, academic, patient advocacy, and policy domains. Our research identified several critical insights that highlight the limitations of relying solely on “clinical benefit” and the need for a patient-centered approach.
Key Findings
Current clinical benefit measurements frequently overlook patient-prioritized outcomes and unmet needs, potentially leading to misaligned incentives in healthcare delivery.
Example: Traditional metrics might focus on hospital readmission rates, while patients prioritize their ability to return to work or engage in social activities.
While standardized quality measures exist, they often fail to translate meaningfully to patients’ daily lives and goals.
Example: A successful walk test after cardiac surgery might not reflect a patient’s ability to perform activities they enjoy, such as gardening or playing with their grandchildren.
Patient-Reported Outcome Measures (PROMs) offer valuable insights but must be integrated thoughtfully with clinical metrics.
Example: PROMs can capture patients’ experiences, symptoms, and overall quality of life, providing a more complete picture of treatment effectiveness.
Financial considerations, while important, should be analyzed separately from core patient benefit assessments.
Explanation: While financial stress can significantly impact treatment adherence and outcomes, it should be considered separately from core patient benefit metrics.
"For too long, we've compartmentalized healthcare into silos – clinical outcomes here, patient-reported outcomes there. This fragmentation is not just inefficient; it's detrimental to patient care. We need a new definition of clinical benefit that encompasses both the measurable clinical impacts and the profound effects on a patient's quality of life."
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Discover how Patient Benefits can be applied to improve healthcare.
