In an ideal world, patient preferences and insights would guide resource allocation, clinical decisions, and product innovation. Instead, multiple stakeholders—including providers, innovators, payers, regulators, and employers—compete and collaborate in complex ways that often dilute patient impact.
Our Mission
The Coalition for Patient Benefit (CfPB) aims to change this by developing a validated, transparent process for communicating what matters most to patients—“patient benefit”—that can be systematically integrated into healthcare policies and practices across the United States. By doing so, CPB strives to optimize patient outcomes, reduce inefficiencies, and promote policies and healthcare that aligns with patient priorities.
- Evaluate & Refine Measurement Protocols
Review and adapt existing outcome measurement sets (like ICHOM) against our comprehensive process for defining “patient benefit,” ensuring they accurately reflect patient-centered outcomes. We also plan to enhance these outcome sets by incorporating quantitative patient preference data to provide relative weights on each of the outcomes. - Identify Policy Barriers & Opportunities
Pinpoint reforms in reimbursement, coverage, pricing, and quality frameworks where patient benefit measures can be effectively integrated. - Foster Multi-Stakeholder Collaboration
Establish expert working groups, host convenings, and conduct workshops to educate, evaluate, and develop policy recommendations—featuring patient representatives as key advisors. These convenings will include various stakeholder groups such as clinicians, hospitals, payers, regulators, and industry. - Generate Empirical Evidence & Policy Frameworks
Produce evidence demonstrating how the implementation of patient benefit measures improves care and outcomes, along with detailed policy proposals for integrating these measures into healthcare policy decision-making processes.
- Stakeholder Working Groups
Convene working groups across stakeholder domains (patient, hospital, clinician, payer, innovator (drug / device)).
- Match current protocols against our patient benefit definitions to improve adoption in clinical, regulatory, and payment contexts. This includes collaborating with ICHOM to translate core outcome sets into meaningful use in healthcare settings.
- Develop policy papers—covering physician payment, drug negotiation, coverage, and more —that harness patient benefit data to enhance decision-making.
- Treatment-specific Projects:
Assess efforts such as the ICHOM Diabetes and Obesity core outcome sets, and explore how better alignment with patient priorities can enhance their uptake and impact.
- Policy-specific Projects:
Evaluate the policy landscape and help impacted coalition members communicate the importance of including patient benefit in decision-making.
- Scaling & Advocacy:
Drive ongoing advocacy to embed patient benefit considerations into healthcare policymaking, ensuring greater system-wide focus on outcomes that truly matter to patients.
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