Types of Quality Measures
Agency for Healthcare Research and Quality | Accessed November 17, 2024
Guide explaining different categories of healthcare quality measures used to assess healthcare performance and outcomes
Clarifying the Meaning of Clinically Meaningful Benefit in Clinical Research: Noticeable Change vs Valuable Change
Weinfurt KP | 2019
Commentary distinguishing between changes patients can notice versus changes they find valuable in clinical outcomes
Our Measure of Medical Research Should Be Appreciable Benefit to the Patient
Lubowitz, J.H., et al. | 2019
Editorial advocating for patient-centered outcome measures that focus on meaningful benefits to patients rather than statistical significance alone
A Blueprint for Developing Patient-Centered Core Impact Sets (PC-CIS)
National Health Council | Cited December 1, 2024
Framework for creating standardized, patient-centered outcome measurement tools across different health conditions
A summit on amplifying voices of patients, caregivers, and people with disabilities in Inflation Reduction Act drug price negotiations
Miller, Maxine, et al. | 2024
Report on stakeholder engagement strategies to include patient perspectives in pharmaceutical pricing policy decisions
PIPC Recommendations for Patient Engagement
Partnership to Improve Patient Care | June 2024
Guidelines for meaningful patient participation in healthcare decision-making processes and policy development
Enhancing the Diversity of Clinical Trial Populations – Eligibility Criteria, Enrollment Practices, and Trial Designs Guidance for Industry
FDA | 2024
FDA guidance document on strategies to improve clinical trial inclusivity and demographic representation
Best-worst scaling: What it can do for health care research and how to do it
Flynn TN, Louviere JJ, Peters TJ, Coast J | 2007
Methodological guide explaining best-worst scaling techniques for preference elicitation and priority setting in healthcare research